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Welcome to the FG Syndrome Family Alliance, Inc.
An organization for individuals and families touched by FG Syndrome and related conditions We hope you find our new website helpful in your quest to learn more about FG Syndrome or related conditions. Whether you are here as a friend or family member, have FG Syndrome yourself, or are just curious to learn more, please spend some time reviewing the site and let us know what you think. We offer a listserv where you can connect to other families dealing with the challenges of FGS, or related disorders. We also provide information on new research, etc., when available, to those who register with us. Please come back often and leave us your comments and suggestions. Many families new to FG Syndrome and related conditions find it helpful to speak with others who can understand some of what they are experiencing. If you would like to be in touch with an FGSFA volunteer or others living with FGS in your area, please contact us and we will be in touch with you shortly.
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News & Updates View our latest News & Letter from the President New Section – FG Families’ Experiences with FGS Register with the FGSFA Register today with the FGSFA… Research Updates: Click here for information on an FGS3 Exome Sequencing Research project from Dr. John Opitz (February, 2011) Click here for a list FG Syndrome articles, including several publications from Drs. Opitz, Graham, Schwartz and Stevenson.
Click here for easy ways to support the FGSFA by doing what you do anyway! Your donations to the FGSFA, Inc. are appreciated! |
All information contained herein is for informational purposes only. Readers are encouraged to confirm the information contained herein with other sources. Readers should review the information carefully with their professional health care provider. The information is not intended to replace medical advice offered by physicians. The FG Syndrome Family Alliance, Inc. will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising herefrom.