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NOTICE: This page is no longer updated or monitored. However, we hope you find the information here of interest in your quest to learn more about FG Syndrome. We encourage you to connect with other families and friends touched by FG Syndrome through our Facebook page.

Welcome to the FG Syndrome Family Alliance, Inc., an organization for individuals and families touched by FG Syndrome and related conditions

Whether you are here as a friend, family member, medical professional, or have FG Syndrome yourself, we hope you find our website helpful in your quest to learn more about FG Syndrome or related conditions.

The FG Syndrome Family Alliance mourns the passing of Ben Wharton, a loving, joyful and cherished member of the FG Syndrome Family Alliance who passed away in May at the age of 26.

In Memory of Ben Wharton


Dr. John Opitz with Ben Wharton

Popular Pages:

NEW: July 2014 Research Update from Dr. John Opitz

Learn about FG Syndrome

Common Symptoms and Traits of FG Syndrome and related conditions

News and Letter from the President

FG Families’ Experiences with FGS

FG Syndrome articles

All information contained herein is for informational purposes only. Readers are encouraged to confirm the information contained herein with other sources. Readers should review the information carefully with their professional health care provider. The information is not intended to replace medical advice offered by physicians. The FG Syndrome Family Alliance, Inc. will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising herefrom.