Welcome to the FG Syndrome Family Alliance, Inc., an organization for individuals and families touched by FG Syndrome and related conditions

We hope you find our new website helpful in your quest to learn more about FG Syndrome or related conditions. Whether you are here as a friend or family member, have FG Syndrome yourself, or are just curious to learn more, please spend some time reviewing the site and let us know what you think.

We offer a listserv where you can connect to other families dealing with the challenges of FGS, or related disorders. Through this forum, you may ask specific questions about FGS-related issues and will frequently receive multiple responses from families who willingly share their experience. Or, perhaps you prefer to just monitor the listserv discussions for your personal education of FGS and its many related traits. For less formal sharing, we also have a Facebook page.

We also provide information on new research, etc. as quickly as it becomes available. For your convenience, family members who register with us receive these updates quickly through our E-newsletter, which is sent directly to you through your email address (and rest assured we will only email when there is real news to share – we will not clutter your email box).

Thank you for visiting. Please come back often and leave us your comments and suggestions.

Learn about FG Syndrome Here


Common Symptoms and Traits of FG Syndrome
and related conditions


News & Updates - View our latest News & Letter from the President


New Section – FG Families’ Experiences with FGS – Learn what to watch for and how others have dealt with many common medical and other aspects of FG Syndrome.Register with the FGSFA


Register today with the FGSFA to receive email updates as they become available


Research Updates:

FGS3 Exome Sequencing Research project from Dr. John Opitz

FG Syndrome articles, including several publications from Drs. Opitz, Graham, Schwartz and Stevenson


Your donations to the FGSFA, Inc. are appreciated!

All information contained herein is for informational purposes only. Readers are encouraged to confirm the information contained herein with other sources. Readers should review the information carefully with their professional health care provider. The information is not intended to replace medical advice offered by physicians. The FG Syndrome Family Alliance, Inc. will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising herefrom.