Welcome to the FG Syndrome Family Alliance, Inc., an organization for individuals and families touched by FG Syndrome and related conditions

Whether you are here as a friend, family member, medical professional, or have FG Syndrome yourself, we hope you find our website helpful in your quest to learn more about FG Syndrome or related conditions.

We offer a listserv and Facebook page where you can connect to other families affected by FGS, or related disorders.

We also provide information on new research, etc. either through our Listserv or Facebook page. We also suggest family members or interested caretakers and medical professionals register with us to receive occasional news updates. (and rest assured we will only email when there is real news to share – we will not clutter your email box).

Thank you for visiting. Please come back often!

The FG Syndrome Family Alliance mourns the passing of Ben Wharton, a loving, joyful and cherished member of the FG Syndrome Family Alliance who passed away in May at the age of 26.

In Memory of Ben Wharton


Dr. John Opitz with Ben Wharton

Popular Pages:

NEW: July 2014 Research Update from Dr. John Opitz

Learn about FG Syndrome

Common Symptoms and Traits of FG Syndrome and related conditions

News and Letter from the President

FG Families’ Experiences with FGS

Register with the FGSFA

FG Syndrome articles

Thank you for supporting the FGSFA!


Join FG Families on Facebook



All information contained herein is for informational purposes only. Readers are encouraged to confirm the information contained herein with other sources. Readers should review the information carefully with their professional health care provider. The information is not intended to replace medical advice offered by physicians. The FG Syndrome Family Alliance, Inc. will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising herefrom.