Comments for FG Syndrome Family Alliance http://www.fgsyndrome.org Together We Can Make A World of Difference Fri, 23 Mar 2012 01:00:48 -0500 http://wordpress.org/?v=2.8.6 hourly 1 Comment on Welcome! by fgsyndr1 http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-388 fgsyndr1 Fri, 23 Mar 2012 01:00:48 +0000 http://fgsyndrome.org/?p=1#comment-388 You sound like an amazing grandmother, and your grandsons sound pretty special too. Laughter definitely gets us through some pretty trying times. I don't think anyone makes us laugh (or cry) more than our 16 year old son-what a roller coaster ride! You sound like an amazing grandmother, and your grandsons sound pretty special too. Laughter definitely gets us through some pretty trying times. I don’t think anyone makes us laugh (or cry) more than our 16 year old son-what a roller coaster ride!

]]> Comment on Welcome! by fgsyndr1 http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-387 fgsyndr1 Fri, 23 Mar 2012 00:56:41 +0000 http://fgsyndrome.org/?p=1#comment-387 Hi Mary, sorry it took so long to respond - the "comments" section became unintentionally neglected, but I think I have the hang of it now! These days many people have been interacting through Facebook, as well as our listserv. Hi Mary, sorry it took so long to respond – the “comments” section became unintentionally neglected, but I think I have the hang of it now! These days many people have been interacting through Facebook, as well as our listserv.

]]> Comment on Welcome! by fgsyndr1 http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-386 fgsyndr1 Fri, 23 Mar 2012 00:52:35 +0000 http://fgsyndrome.org/?p=1#comment-386 Hi Jenny, You may want to join and post on the “FG Syndrome Family Alliance” Facebook page. While there are mostly family members there, you may find someone who has ideas on the subject. So nice of you to look into this for her! Hi Jenny,

You may want to join and post on the “FG Syndrome Family Alliance” Facebook page. While there are mostly family members there, you may find someone who has ideas on the subject. So nice of you to look into this for her!

]]> Comment on Welcome! by Jenny http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-357 Jenny Mon, 06 Feb 2012 16:35:03 +0000 http://fgsyndrome.org/?p=1#comment-357 I work in a rural school with a high school girl who has FG. I was hoping to connect her with other teens with FG through a web group or a pen pal. She's on Facebook and has an email account. She prefers Facebook though. Any ideas? I work in a rural school with a high school girl who has FG. I was hoping to connect her with other teens with FG through a web group or a pen pal. She’s on Facebook and has an email account. She prefers Facebook though. Any ideas?

]]> Comment on Welcome! by judy http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-239 judy Sun, 07 Aug 2011 08:04:08 +0000 http://fgsyndrome.org/?p=1#comment-239 I have two grandsons that I have custody of that have fg syndrome. One is 13 who we just found out only has one kidney. He is so funny and can build anything. he is obsessed with ceiling fans which drives us crazy some times but you just have to laugh. The oldest one is 17. He is a senior in high school. Everybody loves him and he is a hared worker. They live with me ( 60) and my mother (81). They take good care of us. I have two grandsons that I have custody of that have fg syndrome. One is 13 who we just found out only has one kidney. He is so funny and can build anything. he is obsessed with ceiling fans which drives us crazy some times but you just have to laugh. The oldest one is 17. He is a senior in high school. Everybody loves him and he is a hared worker. They live with me ( 60) and my mother (81). They take good care of us.

]]> Comment on Welcome! by Mary Carbone http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-195 Mary Carbone Sun, 08 May 2011 19:02:28 +0000 http://fgsyndrome.org/?p=1#comment-195 i joined the yahoo group and have followed all other directions that have been asked of me so when will i be able to converse with others i joined the yahoo group and have followed all other directions that have been asked of me so when will i be able to converse with others

]]> Comment on Welcome! by The FGSFA, Inc. http://www.fgsyndrome.org/2009/11/16/hello-world/comment-page-1/#comment-1 The FGSFA, Inc. Tue, 17 Nov 2009 02:17:49 +0000 http://fgsyndrome.org/?p=1#comment-1 Welcome to the new home of the FG Syndrome Family Alliance. Please share your comments with us! Welcome to the new home of the FG Syndrome Family Alliance. Please share your comments with us!

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