What is the life-expectancy of a child born with FG Syndrome?

Sadly the FGSFA has shared the loss of several children over the years, with their families who grieve for them. Some health conditions associated with the syndrome can be quite serious and even life-threatening. However, it would be irresponsible to place a number on the life-expectancy of an individual based on FGS diagnosis. It is safe to say that the life-expectancy of a person with FGS, dealing with a serious medical issue associated with the syndrome, is the same as the life-expectancy of the person with that medical issue who does not have FGS.

FG Syndrome is the genetic condition that results in a multitude of congenital anomalies. No child appears to have all the anomalies associated with FGS, and thus their health issues vary from mild to extreme. Based on reports from various families, the early years are often the most critical for health issues, and thus early diagnosis and care of various health-related issues is encouraged. Advances in medical care, and even in attitudes, toward persons with serious health and developmental issues contribute to a better outlook of the life-expectancy of children born with congenital anomalies. Corrective surgery or proper treatment for some of the anomalies of FGS were nonexistent or rarely successful even as late as the 1950s, 60s, and 70s. Amongst the families within the FGSFA, there are numerous adult children diagnosed with FGS, ranging in age from their 20’s to 60s.