Is there a cure for FG Syndrome?

FG Syndrome is not a “curable” condition. It is caused by a change on the X chromosome before the child is ever born. Mapping studies seeking to pinpoint all of the FG Syndrome gene locations will enable families to make informed choices about childbearing, but it will not be possible to “cure” children who have the syndrome.

This said, children with developmental disabilities can learn and grow. Early Intervention is essential to helping children reach their maximum potential. A study was conducted in 1999 at the University of Utah to gain more information about how boys with FG Syndrome learn.  A second behavior study was conducted at Cedars Sinai in 2008.  These studies helped to gain information about how boys with FG Syndrome learn so that their educational programs might be better suited to their needs. Also, problems such as feeding issues, constipation, motor function and behavior can be addressed and improved through exercise, therapy, education and/or diet.